Here’s my portfolio of published articles and other work.
If you’re interested in collaborating, please get in touch with me.
Columnist
Writer of the “TAPS Talks” column in the Dutch Meerlingen magazine each quarter.
Published Articles
AIMS Journal
Screening for twins: Why good guidelines matter – ISSN 2516-5852 (Online) AIMS Journal, 2024,
Vol 36, No 1
Rare Revolution Magazine
Engaging Patients To Shape The Research Of The Future
Rare Revolution Website, 21 April 2023
Seeing Red: The Importance of TAPS Screening
Rare Revolution Website, 26 November 2022
The Role of Gender
in
Rare Disease.
RARE and Equitable Summer 2021
Turning The Tide
For
Rare Disease
Rare Revolution Website, 28 February 2021
Amsterdam Mamas
One Mother’s Story of Twin-to-Twin Transfusion Syndrome
PatientWorthy
What Rare Disease Patients Want Doctors To Know
24/03/2023
Online Rare Disease Communities
21/04/2021
A Look At The
TAPS Trial
13/05/2021
How Patient Groups Can Help Medical Teams
27/05/2021
The Lessons I Learned from a TAPS Diagnosis
26/10/2021
What is Twin Anemia Polycythemia Sequence?
11/05/2021
Twiniversity
What is TAPS? Learn About This Little Known Complication
Twinfo
When Selective Reduction Is On The Table
TAPS and Twins:
What is it?
Telling Newborn Identical Twins Apart
Raising Bilingual
Twins
PatientWorthy
Do Google It: The Benefits Of Patient Led Advocacy Groups
Other Articles
Changing The Narrative: Advocating For Your Kids
Amsterdam Mamas
“TTTS vs TAPS:
What’s The Difference Anyway?”
Connexions Issue 6 – Spring 2020, pages 14-17 – Fetal Health Foundation
Twin Anemia Polycythemia Sequence: The Slow Change That Alters Everything
Fetal Health Foundation
TTS en TAPS: meerlingaandoeningen
tijdens de zwangerschap
NVOM
‘We have to deliver them quickly.’ They arrived tiny, one very pale and thin, the other red, puffy.’: Mom raises awareness about rare Twin Anemia Polycythemia Sequence
Love What Matters
Complications of Twin Pregnancies
Japan Multiple Birth Association.
Scriptwriter and advisor. Credited as Assistant Producer
The Inbuggering Diaries
An Aussie taking on the Netherlands, one klompje at a time
Want to collaborate?
Click this button to get in touch – I promise I don’t bite (just feed me lots of coffee)
Business Registration:
Stephanie Ernst operates under the business name of Stephanie Ernst Consulting, registered with the Dutch Chamber of Commerce (Kamer van Koophandel) under number 71293353. Any invoices will be issued under this business entity. For pricing, get in touch.