Skip to content

Latest Appearances

Interested in what I have to say? Here are some of my appearances and interviews with different groups and organizations. Want to work with me? Check out my speaker page, where you’ll find my bio, topics, and how to get in touch.

Upcoming events:

Confirmed: Manchester, October 2024 – Twin parents in the NICU

Recent Appearances:

Photo credit: Monique Oude Reimer

The Red and White Twins: The Story of a Foreign Parent With Complicated Twins in a Dutch NICU

Conversations in Fetal Medicine Podcast (with Jane Currie)

In conversation with Stephanie Ernst (TAPS Support) – published 6 June 2024

GEFOG Health Foundation Twin and Multiple Pregnancy Academy

March 10th, 2024. Expert Patient panellist on : “Understanding TAPS: Challenging Case Scenarios”

TAPS: What Is It, And Why It Really Matters When Pregnant With Twins

Twiniversity Podcast with Natalie Diaz

Medics4RareDiseases

TAPS and Identical Twins—raising awareness, sharing hope. March 3, 2022

Author Nichola Luther launched her book “TAPS, Identical Twins and Covid” on International TAPS Day, 2022. Together with Nichola and Prof. Asma Khalil, we discussed aspects of Nichola’s book, as well as the need to change the way we talk about TAPS.

The Rare Fair, January 12, 2022

Panelist: Oversharing: Managing Your Social Media with your Child in Mind

Together with the Rare Revolution Magazine team, my role as panelist was to discuss finding a balance between oversharing and sharing online to raise awareness for rare diseases as parents.

19th International Congress on Twin Studies- Budapest

Fetal Health Foundation

In this webinar, held in November 2020, I was a panelist discussing why a dedicated foundation for TAPS was needed, and about what fuelled my passion to create this. Other panelists included Lonnie Somers of the Fetal Health Foundation, Dr. Enrico Lopriore, and Dr. Femke Slaghekke.

Bloggers Battle

TAPS Symposium

Speaker bio

Stephanie Ernst, an Australian-born, Dutch-by-choice writer, speaker, and patient advocate, lives in the Netherlands. Her daughters, born at 31 weeks, are the faces of Twin Anemia Polycythemia Sequence (TAPS). After struggling to find quality information on TAPS, Stephanie created a Facebook community that evolved into the charity TAPS Support. Her aim is to promote research into the complications of monochorionic twins, raise funds for research projects, and support future researchers. She emphasizes the importance of parents being active members of their care teams by providing clear, accessible information and breaking down medical jargon.

Stephanie actively publishes research with other TTTS mothers, and frequently writes and speaks on twin-related topics. She works in marketing for companies involved in clinical research, training, and coaching. In her spare time, she enjoys spending time with her twins and patient husband, drinking coffee, and occasionally indulging in a G&T. Stephanie’s passion for myth-busting twin complications and building rare disease communities drives her continued advocacy and research efforts.

To discuss having me speak at your function, or in your webinar, contact me at info@stephanieernst.nl, or via my contact page.

Let’s work together

To discuss how we can work together, click the button below to contact me.