There is a lot of symbolism and respect within the white coat for medical professionals. It’s a symbol of knowledge, of a lot of learning, and carries a lot of esteem and recognition. After all, medical professionals earn the right to wear the white coat, with years of study and field experience to establish their role as an expert.
It is not an easy role nor an easy pathway to reach the role of medical professional, and this should be respected. But along with the respect that the white coat should deserve comes sometimes an unwanted side effect – white coat syndrome.
Continue reading “Leave The White Coat At The Door”
I saw an article online that’s gone somewhat viral – a TikTok from a twin mum urging parents to stop worrying about delayed development in their babies- you can’t even compare twins. As a parent of twins, I absolutely 100% agree with this sentiment – it’s something we all catch ourselves doing, and it can be stressful.
Continue reading “Don’t Compare Twins, But Keep The Differences In Mind.”
I recent wrote an article for Rare Revolution magazine – “Engaging Patients To Shape The Research Of The Future”, explicitly talking about how the shape of research is changing, with more and more focus now turning to consultation of patient organisations in developing clinical research.
Continue reading “Lived vs Learned Experience – The Role of Patients in Research “
Parenting is hard. We go through the challenge of falling pregnant, carrying a pregnancy, and then it comes to birth. There are so many choices, so many decisions, and each one makes an impact on our lives. C-section vs vaginal delivery, breastfeeding or bottle-feeding, midwife or obstetrician, homebirth or hospital delivery – the list is endless, and everyone has an opinion on what is best. Parenting a rare disease can be harder.
Continue reading “Parenting A Rare Disease In The Netherlands.”
This is a post where I will be talking about a few things. The concept of being a “hybrid” specialist, the magical, mystical world of search engine optimisation (SEO), and the need for open communications between doctors and patients.
Sounds exhausting, right?
Continue reading “SEO, Patient Experts and the Hybrid Specialist”
This isn’t a discussion on your search history (so you can all take a breath). Although I’m a big fan of search engines and finding accurate information to help you understand a diagnosis, I also know that a plethora of wrong information is just as accessible.
Patients are often told not to Google things after a discussion with their doctor, and of course, being the humans we are, we will go and do precisely the opposite. (Don’t deny it, we’ve all done it!)
Continue reading “What Have You Googled Recently?”