There is a lot of symbolism and respect within the white coat for medical professionals. It’s a symbol of knowledge, of a lot of learning, and carries a lot of esteem and recognition. After all, medical professionals earn the right to wear the white coat, with years of study and field experience to establish their role as an expert.
It is not an easy role nor an easy pathway to reach the role of medical professional, and this should be respected. But along with the respect that the white coat should deserve comes sometimes an unwanted side effect – white coat syndrome.
Continue reading “Leave The White Coat At The Door”
I saw an article online that’s gone somewhat viral – a TikTok from a twin mum urging parents to stop worrying about delayed development in their babies- you can’t even compare twins. As a parent of twins, I absolutely 100% agree with this sentiment – it’s something we all catch ourselves doing, and it can be stressful.
Continue reading “Don’t Compare Twins, But Keep The Differences In Mind.”
It’s another one of those weird crossover posts from me. Where advocacy meets content marketing is a strange little world where you’ll find me lurking in the corners, blending topics that don’t really seem like they go together, and yet, I somehow make it happen. In today’s topic – hashtags.
Continue reading “Stop Pretending Hashtags Are The Same As Doing Something”
I recent wrote an article for Rare Revolution magazine – “Engaging Patients To Shape The Research Of The Future”, explicitly talking about how the shape of research is changing, with more and more focus now turning to consultation of patient organisations in developing clinical research.
Continue reading “Lived vs Learned Experience – The Role of Patients in Research “
Parenting is hard. We go through the challenge of falling pregnant, carrying a pregnancy, and then it comes to birth. There are so many choices, so many decisions, and each one makes an impact on our lives. C-section vs vaginal delivery, breastfeeding or bottle-feeding, midwife or obstetrician, homebirth or hospital delivery – the list is endless, and everyone has an opinion on what is best. Parenting a rare disease can be harder.
Continue reading “Parenting A Rare Disease In The Netherlands.”
This is a post where I will be talking about a few things. The concept of being a “hybrid” specialist, the magical, mystical world of search engine optimisation (SEO), and the need for open communications between doctors and patients.
Sounds exhausting, right?
Continue reading “SEO, Patient Experts and the Hybrid Specialist”
I’ve just realised I’m a 5-year veteran of having my own business. For almost 2000 days, I’ve been working as a freelance writer and content specialist, expressing myself through the written word.
I’ve also been reasonably successful over the years, with amazing clients and many stories. I’ve learned a lot of lessons, both as a business owner and lessons on how to improve my skills, which directly help my clients. I also have invested time and money into learning new skills, gathering resources, and new software and trade tools.
Continue reading “Over Exposed: Working for Exposure”
This isn’t a discussion on your search history (so you can all take a breath). Although I’m a big fan of search engines and finding accurate information to help you understand a diagnosis, I also know that a plethora of wrong information is just as accessible.
Patients are often told not to Google things after a discussion with their doctor, and of course, being the humans we are, we will go and do precisely the opposite. (Don’t deny it, we’ve all done it!)
Continue reading “What Have You Googled Recently?”
I am so lucky to have my twins, and they have changed my life. But there are so many things that I wish people knew about a multiple pregnancy and its impact on your life. There are so many questions we’re asked, and so many things that are said and sometimes the answers are not easy, and the story isn’t that simple.
Continue reading “So Many Questions”
Content curation is a skill that is highly undervalued. It’s actually one of the most straightforward tools to keep your social media feeds running and help position your voice as an industry leader. It’s an easy thing to put into your daily routine and as simple as utilizing some online tools to find relevant content for your business.
Continue reading “How To Look Like A Content Curation Expert Without A Lot Of Effort”