I saw an article online that’s gone somewhat viral – a TikTok from a twin mum urging parents to stop worrying about delayed development in their babies- you can’t even compare twins. As a parent of twins, I absolutely 100% agree with this sentiment – it’s something we all catch ourselves doing, and it can be stressful.
Continue reading “Don’t Compare Twins, But Keep The Differences In Mind.”Stop Pretending Hashtags Are The Same As Doing Something
It’s another one of those weird crossover posts from me. Where advocacy meets content marketing is a strange little world where you’ll find me lurking in the corners, blending topics that don’t really seem like they go together, and yet, I somehow make it happen. In today’s topic – hashtags.
Continue reading “Stop Pretending Hashtags Are The Same As Doing Something”Lived vs Learned Experience – The Role of Patients in Research
I recent wrote an article for Rare Revolution magazine – “Engaging Patients To Shape The Research Of The Future”, explicitly talking about how the shape of research is changing, with more and more focus now turning to consultation of patient organisations in developing clinical research.
Continue reading “Lived vs Learned Experience – The Role of Patients in Research “Parenting A Rare Disease In The Netherlands.
Parenting is hard. We go through the challenge of falling pregnant, carrying a pregnancy, and then it comes to birth. There are so many choices, so many decisions, and each one makes an impact on our lives. C-section vs vaginal delivery, breastfeeding or bottle-feeding, midwife or obstetrician, homebirth or hospital delivery – the list is endless, and everyone has an opinion on what is best. Parenting a rare disease can be harder.
Continue reading “Parenting A Rare Disease In The Netherlands.”SEO, Patient Experts and the Hybrid Specialist
This is a post where I will be talking about a few things. The concept of being a “hybrid” specialist, the magical, mystical world of search engine optimisation (SEO), and the need for open communications between doctors and patients.
Sounds exhausting, right?
Continue reading “SEO, Patient Experts and the Hybrid Specialist”Over Exposed: Working for Exposure
I’ve just realised I’m a 5-year veteran of having my own business. For almost 2000 days, I’ve been working as a freelance writer and content specialist, expressing myself through the written word.
I’ve also been reasonably successful over the years, with amazing clients and many stories. I’ve learned a lot of lessons, both as a business owner and lessons on how to improve my skills, which directly help my clients. I also have invested time and money into learning new skills, gathering resources, and new software and trade tools.
Continue reading “Over Exposed: Working for Exposure”What Have You Googled Recently?
This isn’t a discussion on your search history (so you can all take a breath). Although I’m a big fan of search engines and finding accurate information to help you understand a diagnosis, I also know that a plethora of wrong information is just as accessible.
Patients are often told not to Google things after a discussion with their doctor, and of course, being the humans we are, we will go and do precisely the opposite. (Don’t deny it, we’ve all done it!)
Continue reading “What Have You Googled Recently?”So Many Questions
I am so lucky to have my twins, and they have changed my life. But there are so many things that I wish people knew about a multiple pregnancy and its impact on your life. There are so many questions we’re asked, and so many things that are said and sometimes the answers are not easy, and the story isn’t that simple.
Continue reading “So Many Questions”How To Look Like A Content Curation Expert Without A Lot Of Effort
Content curation is a skill that is highly undervalued. It’s actually one of the most straightforward tools to keep your social media feeds running and help position your voice as an industry leader. It’s an easy thing to put into your daily routine and as simple as utilizing some online tools to find relevant content for your business.
Continue reading “How To Look Like A Content Curation Expert Without A Lot Of Effort”Hi, Hello, and Welcome
Welcome to my shiny new website where I’m finally able to channel my creativity and energy into my passion for writing, speaking and advocacy and share this with the world. This idea has been kicking around for a while, but it was time to take the leap into the world of self promotion, and put a face to my name and what I do.
Continue reading “Hi, Hello, and Welcome”