Don’t Compare Twins, But Keep The Differences In Mind.

Don’t Compare Twins, But Keep The Differences In Mind Stephanie Ernst writer

I saw an article online that’s gone somewhat viral – a TikTok from a  twin mum urging parents to stop worrying about delayed development in their babies- you can’t even compare twins.   As a parent of twins, I absolutely 100% agree with this sentiment – it’s something we all catch ourselves doing, and it can be stressful.

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Lived vs Learned Experience – The Role of Patients in Research         

lived vs learned experience stephanie ernst writer

I recent wrote an article for Rare Revolution magazine – “Engaging Patients To Shape The Research Of The Future”, explicitly talking about how  the shape of research is changing, with more and more focus now turning to consultation of patient organisations in developing clinical research. 

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Parenting A Rare Disease In The Netherlands.

stephanie ernst writer parenting a rare disease in the netherlands

Parenting is hard. We go through the challenge of falling pregnant, carrying a pregnancy, and then it comes to birth. There are so many choices, so many decisions, and each one makes an impact on our lives. C-section vs vaginal delivery, breastfeeding or bottle-feeding, midwife or obstetrician, homebirth or hospital delivery – the list is endless, and everyone has an opinion on what is best. Parenting a rare disease can be harder.

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Over Exposed: Working for Exposure

stephanie ernst writer over exposed working for exposure

I’ve just realised I’m a 5-year veteran of having my own business. For almost 2000 days, I’ve been working as a freelance writer and content specialist, expressing myself through the written word.

I’ve also been reasonably successful over the years, with amazing clients and many stories. I’ve learned a lot of lessons, both as a business owner and lessons on how to improve my skills, which directly help my clients. I also have invested time and money into learning new skills, gathering resources, and new software and trade tools.

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What Have You Googled Recently?

stephanie ernst what have you googled

This isn’t a discussion on your search history (so you can all take a breath). Although I’m a big fan of search engines and finding accurate information to help you understand a diagnosis, I also know that a plethora of wrong information is just as accessible.

Patients are often told not to Google things after a discussion with their doctor, and of course, being the humans we are, we will go and do precisely the opposite. (Don’t deny it, we’ve all done it!)

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How To Look Like A Content Curation Expert Without A Lot Of Effort

content curation stephanie ernst

Content curation is a skill that is highly undervalued. It’s actually one of the most straightforward tools to keep your social media feeds running and help position your voice as an industry leader. It’s an easy thing to put into your daily routine and as simple as utilizing some online tools to find relevant content for your business.

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