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Academic Works

Here’s my academic work, including poster presentations.

Scopus Profile.

If you’re interested in collaborating, please get in touch with me.

Twins Congress 2023

Ernst, S., Aultman, J., Fischbein, R., & Nicholas, L. (n.d.-a). What about the caregivers? The ethical considerations for TAPS screening and follow up care [E-poster].
Twins Congress 2023 ( the Joint 6th World Congress on Twin Pregnancy: The 18th Congress of the International Society for Twin Studies (ISTS) )  15-17 June 2023, Budapest, Hungary.

Fact: This poster and the following article were both inspired by the article “Seeing Red” – first published in Rare Revolution Magazine in 2021

Read the article here.

European Conference on Rare Diseases 2022

2022, A unique partnership in rare diseases: When a patient advocacy group connects with committed researchers. European Conference on Rare Diseases, 27 June – 1 July, Online/France. Stephanie Ernst & Joanne Verweij

Patient-Reported Monochorionic-Diamniotic Twin Pregnancy Management and Experiences During the COVID-19 Pandemic: A Mixed-Methods Cross-Sectional Survey

Fischbein, Rebecca, et al. “Patient-Reported Monochorionic-Diamniotic Twin Pregnancy Management and Experiences During the COVID-19 Pandemic: A Mixed-Methods Cross-Sectional Survey.” Journal of Patient Experience, 2022, https://doi.org/10.1177/23743735221133634.

National Organisation for Rare Diseases

Written with Prof. Enrico Lopriore, we contributed a summary of Twin Anemia Polycythemia Sequence (TAPS) to their database.

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